FUTURE IN MIND
‘Future in Mind’ is an educational initiative by the International Bureau for Epilepsy (IBE) to raise awareness of the cosiderations and consequences of childhood epilepsy. This initiative wil lbe of interest to healthcare professionals, parents and families, teachers and caregivers.

Future in Mind IBE Survey of Children and Teenagers with Epilepsy

Epilepsy is one of the most common neurological conditions in children and young people. We have known for a long time that problems with academic studies, making and sustaining relationships, emotional development and behaviour are more common in children with epilepsy compared with others. Epilepsy therefore is not only a medical diagnosis, but has social consequences that can impact a child’s development and future opportunities.
The International Bureau for Epilepsy (IBE) Survey of Children and Teenagers with Epilepsy was designed to assess the perceptions of people directly involved with childhood epilepsy. This is the first time that the view of children and teenagers with epilepsy, parents, carers and healthcare professionals from arount the world have been agathered as part of a single survey on epilepsy.
The aim of this survey was to gain insight to and quantify theral-life effects that epilepsy can have on areas of quality of life, development and opportunities for the future.
The report presents findings of the survey, including over 1,000 responses from children and teenagers with epilepsy, parents, carers and healthcare professionals from 16 different countries.

Future in Mind Critical Years Review

‘Critical Years’ is a review of published evidence on childhood epilepsy, which explores factors influencing development and outcomes.

To order a copy of the Future in Mind Report please send your request by email to ibedublin@eircom.net