The China Association Against Epilepsy (CAAE), a nationwide professional social organization, was officially inaugurated with the approval of the Ministry of Civil Affairs of China in June 2005. The establishment of CAAE is of great significance for promoting scientific and normative treatment of people with epilepsy (PWE) in the country, rectifying the social discrimination and prejudice against them and safeguarding their lawful rights and interests.
There are around 9 million PWE in China, including 6 million people with active epilepsy. Moreover, there is an additional 0.4 million new cases each year. Based on the number of PWE, it is estimated that there are about 30 million carers (including parents and relatives) of PWE in China. Caring for PWE is often a difficult task taking its toll physically, mentally and emotionally. The economic burden of each family with PWE is huge, especially for people living in rural areas.
The aim of this project is to promote public awareness for carers of PWE, and improve their quality of life. There are 5 objectives of this program:
- Investigation of the mental health, quality of life and economic status of carers;
- To provide health education lectures about epilepsy knowledge and patient care;
- To provide body examination and medical examination for carers;
- Psychological aid to carers;
- To encourage carers to communicate and exchange their experience;
The project will receive US$3,500 from the Promising Strategies Program.