Finnish Epilepsy Association (FEA)
Finnish Epilepsy Association (FEA) promotes the rights of PWE with the IBE EED theme epilepsy is more than seizures. The campaign takes place the whole year and all over the country.
EED 2014 was launched on the 10th of February 2014 in Helsinki, with an educational event to HR professionals of companies with a large number of employees.
Website / Electronic Postcard Campaign
The card can be sent to decision makers with the messages like “Have courage to make good decisions”.
This EED postcard campaign was heavily promoted on the FEA Facebook page. Click here to visit the FEA Facebook FEA sent almost 2000 emails to Finnish decision makers – made up of MEPs of the European Parliament and the Finnish Parliament, as well as member of local councils of Finnish cities and communities.
The Faces of EED 2014 in FinlandMs Nora Klemola, Assistant of the Supreme Court and Mr Juha Karjula, Kindergarten Teacher, speak openly about how their drug resistant epilepsies have effected in their capabilities to work in their professions.
A Personal Story
|Marja Suonpää has learned to appreciate herself in her early fifties. “I have been able to study and have succeeded in my work despite my epilepsy”. She works as senior inspector in The Finnish Safety and Chemicals Agency.
Marja - a fighter and survivor Reflection on Epilepsy
You can read Marja's full story and many other stories, by CLICKING HERE
It is planned for local chapters of FEA to hold face-to-face events at local markets and fairs at which our volunteers will inform people about the effects of epilepsy on everyday life of PWE. There are almost 30 events planned for 2014. FEA has produced material for volunteers such as flyers, magazine, match boxes, balloons and posters. Previously in 2013 we produced tents with our logo for campaigning on the streets, which we will use again this year.
The media release of EED has already been published in many Finnish medias and there is more publicity to come when our volunteers take the special media release personally to the smaller newspapers and radio stations at local level. In addition to that we have challenged our volunteers to send the electronic postcards from the campaign website to their local politicians and officials. We will “bombard” candidates of the European Parliament elections with a special message in which we “cry for” more resources to be awarded to epilepsy research. This is a joint message delivered by our FEA volunteers and the Finnish Chapter of ILAE. FEA has been active in every EED. Little by little we are learning more about how this campaign can gain a great deal of publicity. It a campaigns where our volunteers are able to participate in many ways. At the same time we communicate openly about the many sided disease that epilepsy is and make a change step by step in the attitude and knowledge of the Finnish decision makers.