28th September 2013 – Germany celebrates their Epilepsy Day Epilepsy Day 2013 : Living Life To The Full With Epilepsy
Under the patronage of Senator Cornelia Storck Department of Health and Consumer Protection, Hamburg
Saturday, 28 September 2013 World Café ElbFaire, Ecumenical Forum HafenCity, Shanghaiallee 12, 20457 Hamburg
Epilepsy should not prevent achieving the things you dream of – as is the case for racing cycling Marion Clignet who became a champion sportsperson despite her epilepsy. There are many people with epilepsy, while not achieving the sporting greatness of Marion Clignet, who have not allowed their epilepsy to dominate their lives and prevent them from realizing their dreams. However, there are also people with epilepsy for whom life is not so easy who, for example, would like to travel to distant lands but are nervous of doing so because of their epilepsy, or people with epilepsy who would like to lead a more active life e.g. to go dancing, but who feel hindered by their epilepsy.
Living Life To The Full With Epilepsy: Germany: Epilepsy Day this year, we would like to show people with epilepsy how they can do the things they would like to do, despite their epilepsy – and we would like to encourage them to this alone or with others as part of a self-help group. But we also want to make it clear to people who do not have the disease that people with epilepsy, in both their private and professional lives, can usually do all of the things that healthy people like to do.
Living Life To The Full With Epilepsy: An important prerequisite for this is mobility – that is, the ability to get to where you would like to be. Mobility may be limited because of epilepsy – as is the situation where seizures prevent the person with epilepsy from being about to drive (although this is not always the case since people with epilepsy may obtain a driving licence under certain conditions). Air and sea travel are also possible for people with epilepsy – even to far distant lands. Of course, people with epilepsy need to exercise caution but, when they do, there are usually few restrictions.
Living Life To The Full With Epilepsy: What prevents people with epilepsy being mobile? Often, limited mobility is less objective than subjective – for example, if people with epilepsy do not feel confident to use public transport because they are afraid that they will have a seizure in public. Perhaps they have already had such a bad experience, or they are unsure because they are not well informed and think that certain things – for example air travel – is now allowed because of their epilepsy.
Living Life To The Full With Epilepsy: However, an important prerequisite for this is mobility in a figurative sense – such as undertaking something alone or with others, the desire for new experiences (for example climbing a high rope course), and the desire to expand horizons . Sometimes people with epilepsy also lack the necessary self-confidence – but sometimes it is their environment that acts as a deterrent and discourages them.
Living Life To The Full With Epilepsy: Many of the limitations that people with epilepsy experience do not have to be so – there are many examples of this. We have invited people with epilepsy to this year’s central event who report on how they have achieved their objectives and how they have managed to deal with the things that stood in the way of their goals. We hope that people with epilepsy, and those who do not have epilepsy, may benefit from these experiences. We hope that this will encourage people with epilepsy to be mobile and we hope that people who do not have epilepsy with assist, rather than hinder, them.
Living Life To The Full With Epilepsy: We also want to inform people with epilepsy, and those who do not have epilepsy, of the precautions that should be taken while driving a car, travelling to remote destinations – either by boat or place – so that they feel more confident and are encouraged to travel.
Everyone – with or without epilepsy – is welcome to our event to talk with us about these issues and to report on their personal experiences.
Participation is free and registration is not required. Download Press Release and Program of Events (in German) – click here