Argenina, Asociación de Lucha Contra la Epilepsia
Young people with epilepsy in Argentina experience significant stigma, which can significantly reduce their self-confidence and, as a result, their quality of life.
The Asociación de Lucha Contra la Epilepsia (ALCE) is developing a social club for young people with epilepsy – the ALCE Club. The aim of the club is to improve the quality of lif of persons with epilepsy by providing a range of leisure and learning activities in a social context. Activities will include:
Film screenings, with follow up discussions;
DVD and a book libraries, which the young people will help to create
Artistic workshops to encourage an interest in music and art;
A toy library for the younger members of the club to enjoy.
The objectives of the ALCE Club, which will take place twice weekly, are:
To encourage interaction among people with epilepsy attending the Club
and to provide a link for their peers and families
To increase the young peoples confidence so that they can discuss the
problems they face because of their epilepsy, both with other people with
epilepsy and with the public and general.
Chile, ANLICHE Curicó
Fruit and Vegetable Dehydration Project
People with epilepsy unable to find work, due to poor qualifications or discrimination, will have the chance to undertake training on this project in Curicó City, which will provide them with the skills to work independently, raising family income and, at the same time, improving self-esteem and quality of life.
The project will consist of one year’s training in dehydration techniques for 10 people with epilepsy. Specific objectives are:
To develop a fruit and vegetable dehydration workshop with commercial
potential to enable the participants to achieve financial
independence andmto strengthen their personal autonomy.
To provide the opportunity for the workshop participants to exchange their
experience on living with epilepsy.
The products sold will, in turn, provide the necessary funds to support further development of the project so that more people can be trained in the future.
The students will have training during 3-hour lessons once a week, where a farming technician will teach them the correct techniques in dehydration.
Other professionals will also help to complement the training process, including a food-handling technician and a business administrator to assist in marketing plans.
Remote Rehabilitation Program
In Colombia it is common for children with epilepsy and learning difficulties not to attend school. They live in remote rural areas and parents often cannot afford transport to school. As a result, the children grow up without rehabilitation care and become a severe burden on the family and society. The FIRE 5-step education program is trying to improve things for these children.
Using Latin American Rehabilitation guidelines (GLARE), FIRE meets with
the child’s parents. The group consists of a psychologist, a special
educator, a speech therapist, a physiotherapist and a social worker.
The child is evaluated and an agreed diagnosis is made, evaluating the
stage of knowledge at which the child currently is (for example
The group then estimates the percentage of knowledge to be reached in
30 months and this is explained to the parents.
The program, which is simple but with a defined progress and in which the
parents are trained, runs for the 30 months, with check-ups every three
At the 3 months’ evaluation, if the child has passes the exam, he or she
will progress to level II and so on for 10 periods, after which the goal has
The program has been running for 10 years, and approximately 150 children have enrolled. 70% have completed the course and 30% have dropped out for many reasons, the prominent reason being lack of money for the trip to FIRE every three months.
The Promising Strategy support will be used to cover the cost of stationery and financial aid to parents for transportation to FIRE. With this support, FI8RE expects to have 100% success.
Chile, ANLICHE Africa
Information Program – on the move!
Arica is a fishing port located in the north of Chile. The Arica chapter of ANLICHE is organising a novel way, through a range of initiatives, to raise epilepsy awareness. Using mobile information exhibitions, the association is going out in the community to encourage discussion about epilepsy.
The association will visit 10 public services, 33 schools, 14 centres for people with a disability as well as the community at large.
The program will be promoted on TV and on radio and also in the printed press.
Materials will include posters, CDs and information brochures as well as the use of audiovisual materials.
The information will be provided by a social worker, a neurologist, a social technician and people with epilepsy will also talk about life living with the disease.
Support from the Promising Strategies Program will enable the association to purchase the necessary equipment for the project.