Uruguay : Project of Asociación Urugua Contra La Epilepsia
Epilepsy and Employment Project
Among the many issues involved in QOL, employment training and finding a suitable job are among the most important factors for self‐esteem and autonomy. Employment is an important issue for people with epilepsy and is strongly related to stigma in society.
Although there are laws to protect workers from discrimination, people with epilepsy usually avoid taking steps that lead to legal actions, probably in association with felt stigma.
Asociación Uruguaya contra la Epilepsia and Liga Uruguaya contra la Epilepsia, working with an active group of patients, have developed a novel way to fight discrimination of people with epilepsy by teaching employers and the general public about the disease, stating the magnitude and consequences of such discrimination. The first step is a book on Epilepsy and Employment funded by Promising Strategies.
Written mainly by patients, it will contain personal experiences in choosing a profession, finding a job and keeping it, the dilemma of talking about their epilepsy to co-workers and employers and their reactions.
The publication will also include testimonies written by employers of people with epilepsy, serving as a guide for other employers.
It is hoped that the book can be provided free of charge to the general public, workers unions, teachers, and political parties.
In addition, it could be adapted for use in other Latin American countries.
Ecuador : National Centre for Epilepsy and the Association of Parents of Children with Epilepsy
NeuropsychomotricityNeuropsychomotricity is an interdisciplinary science that provides guidelines for the harmonic development of the individual. It aspires to a psychophysical, emotional and relationship balance in the individual, and in their relationship with the surrounding environment. The effectiveness of the project has been evident in the eight years since its introduction by the Ecuador association. During this time, the psychophysical improvement in patients has been accompanied by a considerable decrease in seizures, compliance with treatment, better behaviour in school, improvement in learning, in self‐esteem and in relationships.
In addition, some patients have been able to reduce their medication. It is intended to further develop the treatment strategy in deepening scientific knowledge by:
- Establishing scales of assessment for implementation of neuropsychomotricity during the child’s development.
- Spreading the programme to schools country-wide, through a partnership agreement between the National Centre for Epilepsy and the Ministry of Education of Ecuador.
- Strengthening working relationships with other countries interested in this proposal.
- Spreading the results of the strategy internationally.