Report on medical and social needs of people with epilepsy and intellectual disability
A joint report of the International League Against Epilepsy Task Force on Intellectual Disabilities and the International Bureau for Epilepsy. Prepared by The Task Force on Intellectual Disabilities and Epilepsy of the International League Against Epilepsy – Mike Kerr, Rose Thompson, Christine Linehan, Mike Glynn, Marco Mula, Antonio Gil-Nagel and Sameer Zuberi.
People with hidden disabilities, such as epilepsy, are among the most vulnerable in any society. All chronic diseases affect quality of life but epilepsy has the greatest impact. Having epilepsy and intellectual disability has an even more profound impact on the lives of people with these conditions and those who care for them. Professionals, paid and family caregivers highlight many concerns. Research into epilepsy and intellectual disabilities is desperately needed in order to improve our understanding and ultimately improve patient care. Giving a voice to these concerns will, we hope, act as a stimulus to improve the quality of care and the focus of research in this area. This stimulus should be further supported by a detailed survey of individuals with epilepsy and intellectual disability themselves – also from non-English language countries – which may answer many questions that, to date, remain unanswered.
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