Future in Mind IBE Survey of Children and Teenagers with Epilepsy

Epilepsy is one of the most common neurological conditions in children and young people. We have known for a long time that problems with academic studies, making and sustaining relationships, emotional development and behaviour are more common in children with epilepsy compared with others. Epilepsy therefore is not only a medical diagnosis, but has social consequences that can impact a child’s development and future opportunities.

The International Bureau for Epilepsy (IBE) Survey of Children and Teenagers with Epilepsy was designed to assess the perceptions of people directly involved with childhood epilepsy. This is the first time that the view of children and teenagers with epilepsy, parents, carers and healthcare professionals from around the world have been gathered as part of a single survey on epilepsy.

The aim of this survey was to gain insight to and quantify the effects that epilepsy can have on the areas of quality of life, development and opportunities for the future.

The report presents the findings of the survey, including over 1,000 responses from children and teenagers with epilepsy, parents, carers and healthcare professionals from 16 different countries and will be of great interest to healthcare professionals, parents and families, teachers and caregivers.

The ‘Future in Mind’ Report is only available in hard copy.

To order a copy, please email your request to the IBE Office.