RESEARCH TASK FORCE
Terms of Reference
1.1 The International Executive Committee is the governing body of the International Bureau for Epilepsy (also referred to as IBE or the Bureau).
1.2 The Research Review Task Force is a Task Force established by the International Executive Committee (IEC) in February 2010.
1.3 The Task Force will work within the ambits of the policy framework set by the International Executive Committee and will report to the International Executive Committee.
1.4 The Chair of the Task Force shall be appointed by the President of IBE.
1.5 The members of the Task Force shall be appointed by the President of IBE following consultation with the Chair of the Task Force.
1.6 The President of IBE shall be ex officio members of the Task Force.
1.7 Meetings of the Task Force will be by teleconference or, in exceptional circumstances, a face to face meeting may be convened.
1.8 The business of the Task Force can also be transacted by email correspondence, between the members, as directed by the Chair.
1.9 The Task Force cannot commit the Bureau to any new programme expenditure or impose significant additional administrative costs without the prior approval of the International Executive Committee.
2.1 To identify and target specific areas of epilepsy research which IBE and its member associations may use in advocacy work, political activity, and in initiatives to publicise and raise awareness of epilepsy. These will include (but are not exclusive to):
To promote research projects which address ways in which the negative effects of epilepsy might be minimized.
To promote research projects into the causes of epilepsy which investigate what might cause epilepsy and make a person more susceptible to developing the condition.
To promote research into seizure frequency
To promote research to find a cure for epilepsy.
To promote research in issues relating to the problems faced by women with epilepsy in relation to contraception, conception , pregnancy and childbirth.
- SUDEP and other epilepsy deaths:
To promote research into Sudden Unexpected Death in Epilepsy (SUDEP) and other epilepsy-related deaths.
- Educational issues in epilepsy:
To promote research into the effects of epilepsy in educational issues, including impaired cognition.
3. Scope and Resources
The Task Force will :
3.1 Consult as necessary with all or any of IBEs stakeholders to carry out its tasks.
3.2 Report to the IBE IEC at least twice yearly.
3.3 The Chair of the Task Force will have access to IBE office staff support and IBEs teleconferencing facilities.
3.4 The Task Force has no other allocated budget but the Chair may request funds through the President for resources which s/he considers essential to ensure that the work of the Task Force can be completed.
4. Work breakdown and schedule
4.1 IBE holds its General Assembly (GA) every two years. The next GA is scheduled for mid-2011. Ideally, the Task Force should provide a first report to the GA within one year by February 2011. This may allow changes to the Constitution and Bye laws to be proposed for presentation to the 2011 GA. The Task Forces final report should be submitted at the latest before February 2013. The Chair of the Task Force shall determine how the work is broken down and scheduled in order to meet these deadlines.
APRIL 2010 MIKE GLYNN IBE PRESIDENT