International Bureau for Epilepsy https://www.ibe-epilepsy.org IBE Ireland Mon, 09 Jan 2017 17:31:44 +0000 en-US hourly 1 https://wordpress.org/?v=4.7.1 IBE Elections 2017-2021 Results https://www.ibe-epilepsy.org/ibe-elections-2017-2021-results/ https://www.ibe-epilepsy.org/ibe-elections-2017-2021-results/#respond Mon, 09 Jan 2017 17:20:27 +0000 https://www.ibe-epilepsy.org/?p=18590 IBE is pleased to announce the results of the recent elections to fill the Officer positions (President, Secretary General and Treasurer) on the International Executive Committee for the period 2017-2021.   President-elect is Prof Martin Brodie (Scotland). Prof Brodie has previously been a member of the IBE International Executive Committee when he held the office [...]

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IBE is pleased to announce the results of the recent elections to fill the Officer positions (President, Secretary General and Treasurer) on the International Executive Committee for the period 2017-2021.

 

President-elect is Prof Martin Brodie (Scotland). Prof Brodie has previously been a member of the IBE International Executive Committee when he held the office of ILAE Treasurer from 2005 to 2009. He has been involved in other IBE activities, including chairing EUcare – a joint task force of IBE and ILAE, which was active from 2001 to 2009.

He set up and chairs the Board of Trustees of the charity Scottish Epilepsy Initiative. Its major project is “The TEA Room”, a friendly space for teenagers with epilepsy. He has received the IBE/ILAE Ambassador for Epilepsy award, the ILAE CEA European Epileptology Award, the Epilepsy Lifetime Service Award from the ILAE UK chapter and the William G Lennox Award from the American Epilepsy Society.

In his election statement, Prof Brodie said: “Epilepsy care should be an equal partnership involving all stakeholders and so we must harness our best talents – wherever these might be found – to convey our message loudly and clearly to the world. We must encourage the general public to listen and learn; ask policy makers to safeguard the rights of people with epilepsy; seek funding to increase research into epilepsy – both scientific and social; and empower people with epilepsy to stand up for themselves. Already the IBE has tremendous global connections – to the WHO, to PAHO, to the UN through its ECOSOC status, and to the ILAE. However, we must continue building more and better networks to form suitable partnerships geared at attaining our goals. We have to look beyond the epilepsy community, and broadcast our message widely, if IBE is to attain a more meaningful place in this increasingly complex and challenging world.”

 

IBE - International Epilepsy SupportMrs Mary Secco (Canada) has been elected as Secretary General. Mrs Secco has also previously served on the IBE International Executive Committee as Vice President North America for the term 2009-2013. She is currently co-chair of the IBE/ILAE Global Outreach Task Force and Chair of the IBE Regional Executive Committee North America.

Mrs Secco served as the Executive Director of the Epilepsy Support Centre, a community based not for profit organization in Ontario, Canada from 2001 to 2013 and, for the past 3 years, has been involved on a grant funded program to develop and evaluate a patient education intervention to improve the knowledge and self-management skills of persons with epilepsy.

In her election statement, Mrs Secco said: “The unanimous passing of the Epilepsy Resolution at the 68th World Health Assembly in Geneva in 2015 marked a turning point for people with epilepsy across the globe. It provides IBE chapters with a powerful tool to engage governments to take concrete action to improve epilepsy care and to take steps to reduce the treatment gap.

The Resolution identifies that ‘epilepsy’ is a major public health issue which has been inadequately addressed to date. This Resolution is what IBE chapters, current and past executives have been working towards for many years and we must now grasp this opportunity and make sure that we do not fail in the role we play in its implementation.

This Resolution aligns closely with IBE’s Strategic Plan and we need to ensure that it translates into effective actions.”

 

IBE - International Epilepsy SupportMr Anthony Zimba (Zambia), who is the current IBE Vice President Africa, has been elected as Treasurer. Mr Zimba has been Vice President Africa since 2009.

Mr Zimba work as Epilepsy Specialist at Levy Mwanawasa hospital in Lusaka, Zambia. He is the founder and Chair of Epilepsy Association of Zambia, which was formed to address the needs of people with epilepsy and their families who are often stigmatized and usually denied their basic human rights in Zambia.

Since the establishment of the association, Mr Zimba has been involved in the creation of epilepsy clinics at government health institutions; the launch of the Global Campaign Against Epilepsy in Zambia; epilepsy conferences and symposia; and teaching courses and public awareness programs in schools and in the community.

In his election statement, Mr Zimba said: “I believe I have a number of valuable qualities I would bring to the position of a treasurer in IBE. My experience of treasury work dates as far back as 1998 when I held various positions as a treasurer in a good number of Associations. This is in addition to the booking keeping and accounts option subjects I did at school. I would like to assure you that, I have the energy and passion to serve our organization diligently.

 

Following the announcement of the election results, the elections to fill the seven Vice President positions – Africa, Eastern Mediterranean, Europe, Latin America, North America, South East Asia and Western Pacific – on the International Executive Committee have begun.

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IE News: Issue 3 – 2016 https://www.ibe-epilepsy.org/ie-news-issue-3-2016/ Fri, 02 Dec 2016 13:44:00 +0000 https://www.ibe-epilepsy.org/?p=18557 Are you wondering why a chicken or, more precisely, a rooster has pride of place on the front cover.? Let me explain. We all know that the rooster is one of the best 'wake up calls' around and, as we race towards the New Year, this issue of the IBE magazine shows that there is [...]

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Are you wondering why a chicken or, more precisely, a rooster has pride of place on the front cover.? Let me explain. We all know that the rooster is one of the best ‘wake up calls’ around and, as we race towards the New Year, this issue of the IBE magazine shows that there is much to wake up to.

Just as we ring in 2017, we will know the identity of the next IBE President, Secretary General and Treasurer, with the other rounds of elections following soon after. By the end of January, we will know which Letters of Intent will have been chosen to be supported by the next round of Promising Strategies funding.

In early February we will celebrate International Epilepsy Day and we hope that even more chapters will celebrate the day in 2017. Already the art competition is proving popular and we have some cute new videos using our mascot, Campi the seahorse, to promote it. Catch him and his friends on Facebook and Twitter! Approval of the Strategic Plan 2016-2019 is nearing completion, and will provide the roadmap for IBE’s future direction.

In closing, I would like to mention another reason for choosing a rooster for the cover. When our Chinese friends begin celebrating their own important New Year, they will welcome in the Year of the Rooster whose personality is deemed to be observant, hardworking, resourceful, courageous and honest – qualities that IBE also strives to maintain. Happy New Year to you all!

Until next time – good reading,

Download: IE NEWS, Issue 3, 2016

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Annual Report : 2015 https://www.ibe-epilepsy.org/annual-report-2015/ Fri, 02 Dec 2016 12:58:19 +0000 https://www.ibe-epilepsy.org/?p=18552 Download Annual Report 2015

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Download Annual Report 2015

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IBE Elections 2017-2021 – Balloting Gets Underway https://www.ibe-epilepsy.org/ibe-elections-2017-2021-balloting-gets-underway/ https://www.ibe-epilepsy.org/ibe-elections-2017-2021-balloting-gets-underway/#respond Wed, 16 Nov 2016 12:30:57 +0000 https://www.ibe-epilepsy.org/?p=18539 Following close of the nomination period, IBE chapters are now invited to ballot in the elections to fill the three officer positions - President, Secretary General and Treasurer – on the International Executive Committee for the term 2017-2021. Ballot papers have already been circulated and the close of balloting is December 31, 2016. The results [...]

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Following close of the nomination period, IBE chapters are now invited to ballot in the elections to fill the three officer positions – President, Secretary General and Treasurer – on the International Executive Committee for the term 2017-2021.

Ballot papers have already been circulated and the close of balloting is December 31, 2016. The results of the elections will be announced in early January 2017.

Following completion of this election cycle, elections to fill the seven regional Vice President positions on the committee will begin on January 4, 2017. As a once off, to begin the new staggering of terms on the International Executive Committee, the Vice Presidents will be elected for a two-year term 2017-2019.

A third cycle of elections, to fill remaining positions on the Regional Executive Committees will start in mid-April.

All elections will be completed by mid-July.

The new term of office for all successfully elected candidates begins at the time of the next IBE General Assembly, taking place during the 32nd International Executive Committee in Barcelona in September 2017.

Meet the candidates and read their election statements.

Nominees for President



Nominees for Secretary General



Nominees for Treasurer

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Director JJ Abrams Calls on Public to Talk About Epilepsy https://www.ibe-epilepsy.org/director-jj-abrams-calls-public-talk-epilepsy/ https://www.ibe-epilepsy.org/director-jj-abrams-calls-public-talk-epilepsy/#respond Mon, 14 Nov 2016 16:57:03 +0000 https://www.ibe-epilepsy.org/?p=18520 Star Wars and Star Trek Director,  J.J. Abrams, has called on people to talk about epilepsy in a new public service announcement for the TalkAboutIt.org campaign. Abrams told viewers that "Lives could literally depend on it", going on to list the statistic for the brain disease in the US. "Nearly 3 million Americans, 65 million people [...]

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Star Wars and Star Trek Director,  J.J. Abrams, has called on people to talk about epilepsy in a new public service announcement for the TalkAboutIt.org campaign.

Abrams told viewers that “Lives could literally depend on it”, going on to list the statistic for the brain disease in the US.

“Nearly 3 million Americans, 65 million people around the world, live with epilepsy and seizures. That’s almost 4% of the population.

“150,000 Americans are diagnosed with epilepsy each year. One in 26 of us will develop epilepsy in our lifetime. Do you know 26 people? Of course you do.”

In the video Abrams talks about the fear of people with epilepsy to tell those around them that they have it and the misconceptions about what to do when someone is having a seizure.

“We need to talk about it to get the facts about seizures. To gain understanding. To learn what epilepsy is AND what it isn’t. To erase the stigma. To support new therapies and research. To save lives. To know what to do if someone has a seizure.”

Learn more about epilepsy on the official International Epilepsy Day website, www.epilepsy.org.

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Evaluation Opens on EU Scheme Which Has Funded Epilepsy Projects https://www.ibe-epilepsy.org/evaluation-opens-eu-scheme-funded-epilepsy-projects/ https://www.ibe-epilepsy.org/evaluation-opens-eu-scheme-funded-epilepsy-projects/#respond Fri, 28 Oct 2016 16:11:38 +0000 https://www.ibe-epilepsy.org/?p=18425 The European Commission has begun a public stakeholder consultation which will feed into the interim evaluation of Horizon 2020, the EU's €77 billion research and innovation funding scheme running from 2014 to 2020. H2o2o has already funded several epilepsy-focused, and other neurological, research projects. More information on these projects can be found on EpilepsyAllianceEurope.org. The interim evaluation [...]

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The European Commission has begun a public stakeholder consultation which will feed into the interim evaluation of Horizon 2020, the EU’s €77 billion research and innovation funding scheme running from 2014 to 2020.

H2o2o has already funded several epilepsy-focused, and other neurological, research projects. More information on these projects can be found on EpilepsyAllianceEurope.org.

The interim evaluation of Horizon 2020 will be an important element in preparations of a next EU research and innovation programme.

Carlos Moedas, European Commissioner for Research, Science and Innovation, said: “I hope as many people as possible will use the chance to have their say on Horizon 2020, its first three years and its future direction. We are already analysing available data, facts and figures. But in order to have a full overview, it is very important to get direct feedback from researchers, entrepreneurs, innovators, citizens and all types of organisations that have participated in the programme.”

Horizon 2020 is one of the largest research and innovation schemes worldwide. In its first two years, the programme attracted over 76,000 eligible proposals. Over 9,000 grant agreements were signed by September 1, 2016 for calls with deadlines in 2014 and 2015, allocating almost €16 billion to boosting excellent science, creating industrial leadership and tackling societal challenges.

The public stakeholder consultation on the interim evaluation of Horizon 2020 will be open until 15 January 2017.

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New Round of Promising Strategies Initiative Announced https://www.ibe-epilepsy.org/new-round-promising-strategies-initiative-announced/ https://www.ibe-epilepsy.org/new-round-promising-strategies-initiative-announced/#respond Fri, 28 Oct 2016 11:18:42 +0000 https://www.ibe-epilepsy.org/?p=18407 IBE is delighted to announce the launch of the next round of funding under its Promising Strategies Program. With 81 projects in 37 countries already supported under this major program, IBE is pleased to further extend its support to epilepsy associations in developing countries to empower them to create initiatives to improve the quality of [...]

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IBE is delighted to announce the launch of the next round of funding under its Promising Strategies Program. With 81 projects in 37 countries already supported under this major program, IBE is pleased to further extend its support to epilepsy associations in developing countries to empower them to create initiatives to improve the quality of life of people with epilepsy in their region.

As a first step, qualifying associations are invited to submit Letters of Intent – with a closing date of November 30. A short list will be announced on December 15, and the final list of projects to receive support in 2017 will be announced in mid-January.

Please consider making a donation to IBE to help us further develop the Promising Strategies Program. With your support we can do great things.

Download the IBE Promising Strategy Call for Letters of Intent.

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Nominations Open for 2017 Ambassador for Epilepsy Awards https://www.ibe-epilepsy.org/nominations-open-2017-ambassador-epilepsy-awards/ https://www.ibe-epilepsy.org/nominations-open-2017-ambassador-epilepsy-awards/#respond Fri, 28 Oct 2016 10:43:28 +0000 https://www.ibe-epilepsy.org/?p=18402 From now until the end of the year, IBE chapters and chapters of the International League Against Epilepsy (ILAE) are invited to nominate candidates to receive one of 12 Ambassador for Epilepsy Awards to be conferred in Barcelona next September at the time of the 32nd International Epilepsy Congress. The Ambassador for Epilepsy Award was introduced by IBE [...]

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From now until the end of the year, IBE chapters and chapters of the International League Against Epilepsy (ILAE) are invited to nominate candidates to receive one of 12 Ambassador for Epilepsy Awards to be conferred in Barcelona next September at the time of the 32nd International Epilepsy Congress. The Ambassador for Epilepsy Award was introduced by IBE and ILAE in 1961 and is given to individuals to recognise outstanding personal contributions to activities that advance the cause of epilepsy. A maximum of 12 awards are bestowed every two years.

Nominations are also open for the Social Accomplishment Award of IBE and ILAE, which is given to an individual to recognise his or her outstanding personal contribution to activities that have resulted in a significant advance in the social well being and or quality of life of people with epilepsy.

The Lifetime Achievement Award is made not more than once every two years. This is the highest award presented by IBE and ILAE and is given to an individual to recognise and honour his or her exceptional and outstanding personal contribution over a long period of time to activities that advance the cause of epilepsy. This contribution and activities should either have been performed at an international level or they should have had an international impact or significance. While IBE and ILAE chapters do not nominate for this award, they are invited to suggest suitable candidates to a member of the IBE International Executive Committee or the ILAE Executive Committee.

Download Award Nomination Forms
Ambassador for Epilepsy
Social Accomplishment

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Epilepsy Advocate, Marian Harkin, Receives European Policy-Maker Award https://www.ibe-epilepsy.org/epilepsy-advocate-marian-harkin-recevies-european-policy-maker-award/ https://www.ibe-epilepsy.org/epilepsy-advocate-marian-harkin-recevies-european-policy-maker-award/#respond Sat, 22 Oct 2016 14:40:50 +0000 https://www.ibe-epilepsy.org/?p=18371 The European Federation of Neurological Associations (EFNA) recently held the second annual Neurology Advocacy Awards. The awards recognise the contribution of an individual or group to the development and promotion of advocacy for people with neurological disorders in Europe. This year’s winners were presented with their awards at a Gala Dinner in Dublin on October 13. [...]

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The European Federation of Neurological Associations (EFNA) recently held the second annual Neurology Advocacy Awards. The awards recognise the contribution of an individual or group to the development and promotion of advocacy for people with neurological disorders in Europe.

This year’s winners were presented with their awards at a Gala Dinner in Dublin on October 13.

The winning European Policy-Maker for 2016 was Marian Harkin MEP, a prominent member of the European Advocates for Epilepsy. She was nominated for the award, jointly, by the International Bureau for Epilepsy and Pain Alliance Europe.

marian-and-gay

Gay Mitchell, former MEP, Marian Harkin MEP

Marian is currently a co-chair of the MEP Interest Group on Brain, Mind and Pain – but has been long-term champion of health issues in the European Parliament.
She was presented with her award by last year’s winner – Gay Mitchell, former MEP.

Other awards presented on the night includes the European Health Professional,  which went to Professor Paola Giunti, the European Patient Advocate, which went to Alistair Newton, and the Lifetime Achievement Award, which was presented to Past President of EFNA Audrey Craven.

 

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New Epilepsy Guide to Empower Patients, Supporters, Stakeholders https://www.ibe-epilepsy.org/new-epilepsy-guide-empower-patients-supporters-stakeholders/ https://www.ibe-epilepsy.org/new-epilepsy-guide-empower-patients-supporters-stakeholders/#respond Mon, 10 Oct 2016 12:29:36 +0000 https://www.ibe-epilepsy.org/?p=18347 The Milken Institute Center for Strategic Philanthropy has developed this Epilepsy Giving Smarter Guide with the express purpose of empowering patients, supporters, and stakeholders to make informed, strategic decisions when directing their philanthropic investments and energy into research and development efforts. The Giving Smarter Guide provides a comprehensive lay-level overview of the disease landscape, key unmet [...]

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gsg_epilepsy_page_01The Milken Institute Center for Strategic Philanthropy has developed this Epilepsy Giving Smarter Guide with the express purpose of empowering patients, supporters, and stakeholders to make informed, strategic decisions when directing their philanthropic investments and energy into research and development efforts.

The Giving Smarter Guide provides a comprehensive lay-level overview of the disease landscape, key unmet needs, philanthropic opportunities and key stakeholders in the epilepsy field. This Guide is intended for the public and philanthropic networks.

Download the Giving Smarter Guide.

 

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