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Click here to download this report. Epilepsy affects about 1% of the population of the South-East Asia Region of WHO thus there are approximately 15 million people with epilepsy in the Region. Despite global advances in modern medicine, epilepsy continues to be surrounded by myths and misconceptions. Patients with epilepsy may be taken to faith healers rather than medical doctors, and only 10-20% of all patients with epilepsy receive appropriate treatment. People with epilepsy and their families have suffered ostracism by society and deprived of treatment, leading to frequent injuries and sometimes, death. The situation is particularly bad in rural and remote areas where almost no services for epilepsy are available. However, as we take courage from the fact that 70 to 80% of people with epilepsy can lead normal lives if properly treated, it is time to introspect as to why 80 to 90% of people with epilepsy are not being treated at all. We must find answers and take appropriate action now. In cooperation with the governments of Member Countries, SEARO hopes to launch nationwide projects in each country to reduce the treatment gap in epilepsy. To carry forward this ambitious project, SEARO recognizes that the support of multiple [...]

Click here to download this report. In Europe, at least 6 million people have epilepsy, and 15 million Europeans will have one seizure at some time in their lives. Nevertheless, in some countries of Europe, epilepsy is not recognized as a brain disorder, and up to 40% of people with this condition may be untreated – the treatment gap. Epilepsy is a treatable condition and relatively cheap medication is available. Professionals who treat people with epilepsy, however, often do not have sufficient specialized knowledge of the condition, and, in some countries, antiepileptic drugs are not always available or are not affordable and diagnostic facilities are lacking or are inadequate. It has been estimated that the 6 million people with active epilepsy in Europe cost over € 20 billion per year, and despite this, very few European countries have national plans for managing the disorder. Epilepsy continues to take its toll, impairing the physical, psychological and social functioning of those affected and equally causes serious psychological, social and economic consequences for their families. People with epilepsy, and sometimes their family members, are often stigmatized, generating a hidden burden which discourages them from seeking the diagnosis and care they require. Stigma leads to [...]

Epilepsy and Employment: a guide for workers and employers A guidebook on epilepsy and employment, geared at people with epilepsy and their employers, has been published in Australia by Epilepsy ACT. The publication was launched at the Australian Capital Territory’s Legislative Assembly in May 2011, with Senator Gary Humphries acting as Master of Ceremonies and Minister Joy Burch introducing the publication. The publication has been well received by Australian politicians and by people with epilepsy and their carers. Prior to publication, the document was checked by five lawyers and was also reviewed by a focus group of persons with epilepsy. While the publication will undoubtedly be of interest to people with epilepsy globally, please note that any reference to legislation refers to Australian law only and is likely to be different in other countries. We would like to thank Jacinta Cummins and her colleagues at Epilepsy ACT for sharing the document with us. Click here to download Epilepsy and the Workplace: a guide for workers and employers.