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International Bureau for Epilepsy

Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.

Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.

Our strategic priorities are to ensure that epilepsy is

recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.

We work to achieve these priorities through a range of programs including:

  • Public Information and Health Education
  • Advocacy
  • International Best Practice Exchange
  • Helping Build Communities of Care

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Our Initiatives

IBE - Initiatives - Promising Strategies

Promising Strategies

The IBE Promising Strategies Program was set up in 2006 and is one of the most successful and innovative of all IBE’s initiatives. READ MORE

IBE - Initiatives - Epilepsy Alliance Europe

Epilepsy Alliance Europe

EAE is the acronym for Epilepsy Advocacy Europe, a Joint Task Force formed following nominations by the Commission for European Affairs (CEA) of the International League Against Epilepsy….READ MORE

IBE - Initiatives - International Epilepsy Day

International Epilepsy Day

International Epilepsy Day is a special event which promotes awareness of epilepsy in more than 120 countries each year. READ MORE

What’s Happening

  • IBE - International Epilepsy Support

New measures to avoid valproate exposure in pregnancy

March 13th, 2018|Comments Off on New measures to avoid valproate exposure in pregnancy

The European Medicines Agency’s experts in medicines safety, the Pharmacovigilance Risk Assessment Committee (PRAC) are [...]

  • IBE - International Epilepsy Support

Nine more MEPs join the European Advocates for Epilepsy Group

March 13th, 2018|Comments Off on Nine more MEPs join the European Advocates for Epilepsy Group

Following recent meetings between members of the IBE/ILAE Epilepsy Alliance Europe Task Force and Members [...]

  • IBE - International Epilepsy Support

Golden Light Awards, Bali 2018

March 13th, 2018|Comments Off on Golden Light Awards, Bali 2018

CALLING ALL IBE CHAPTERS IN SOUTH EAST ASIA AND WESTERN PACIFIC REGIONS Is there a [...]

What is Epilepsy?

IBE - International Epilepsy Support

Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.

IBE - International Epilepsy Support

Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.

IBE - International Epilepsy Support

People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.

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IBE - International Epilepsy Support
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IBE - International Epilepsy Support

Upcoming Congresses

  • IBE - International Epilepsy Support

12th Asian & Oceanian Epilepsy Congress

The 12th Asian & Oceanian Epilepsy Congress will take place in Bali from June 28 to July 1, 2018. Visit the official Conference Website

  • IBE - International Epilepsy Support

10th LACE, San Jose, Costa Rica – September 29th – 2nd October 2018

The 10th Latin American Congress on Epilepsy will take place in San Jose, Costa Rica from September 29th to 2nd October 2018.
This biennial meeting, which is a joint collaboration of the International Bureau for Epilepsy […]

  • IBE - International Epilepsy Support

33rd International Epilepsy Congress, Bangkok 2019

The 33rd International Epilepsy Congress will take place in Bangkok, Thailand from June 22 to 26, 2019. This biennial meeting, which is a joint collaboration of the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE), […]

Congresses

Latest Publications

  • IBE - International Epilepsy Support

Epilepsy Africa News – Issue 7

April 20th, 2018|Comments Off on Epilepsy Africa News – Issue 7

Contents of this Newsletter: Report from Zambia Funding and fundraising for the region WHO resolution [...]

  • IBE - International Epilepsy Support

Epilepsy Africa News – Issue 6

March 14th, 2018|Comments Off on Epilepsy Africa News – Issue 6

Contents of this Newsletter: Report from Zambia Call for committee members Call for chapter reports [...]

  • IBE - International Epilepsy Support

Epilepsy Africa News – Issue 5

February 4th, 2018|Comments Off on Epilepsy Africa News – Issue 5

Contents of this Newsletter: New year messages from Chairperson & Secretary Call for young person [...]