Latest News
The Power of Advocacy – Scarlett Paige reflects on the two months since winning an IBE Golden Light Award
On 9th of April 2019 I received an email that would allow me to advocate [...]
‘Hear My Story ‘ – communications workshop for young adults
In October 2019, the IBE plans to hold the ‘Hear My Story’ workshop [...]
Australians living with epilepsy have access to a new helpline!
An Australian-first telephone and email service to support people living with epilepsy and their families [...]
Chapter News
Epilepsy Ireland – Meet the Chapter
Paddy McGeoghegan, Communications Officer at Epilepsy Ireland, introduces us to the work of the organisation. [...]
Canadian Epilepsy Alliance/Alliance Canadienne De L’épilepsie – Meet the Chapter
In this article, submitted by Deirdre Floyd, President of Canadian Epilepsy Alliance/Alliance Canadienne De L’épilepsie [...]
Epilepsy Association of Sri Lanka (EASL) – Meet the Chapter
Epilepsy Association of Sri Lanka (EASL) is a not-for-profit charity established in 1989 with [...]
Upcoming Congresses
33rd International Epilepsy Congress, Bangkok 2019
The 33rd International Epilepsy Congress will take place in Bangkok, Thailand from June 22 to 26, 2019. This biennial meeting, which is a joint collaboration of the International Bureau […]
4th African Epilepsy Congress – Entebbe, Uganda
The 4th African Epilepsy Congress, jointly organised by the International League Against Epilepsy and the International Bureau for Epilepsy will take place in Entebbe, Uganda, […]
Latest Publications
Epilepsy Africa News – Issue 18
Chairperson & Editor’s message Welcome to this edition of Epilepsy Africa and very warm greetings [...]
International Epilepsy News – Issue 2, 2019
Since the last issue of International Epilepsy News, it’s been a busy time for IBE. [...]
Epilepsy Africa News – Issue 17
Chairperson & Editor’s message This is the 17th issue of Epilepsy Africa newsletter, now published [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
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