International Bureau for Epilepsy
Our Initiatives
Promising Strategies
The IBE Promising Strategies Program was set up in 2006 and is one of the most successful and innovative of all IBE’s initiatives. READ MORE
Epilepsy Alliance Europe
EAE is the acronym for Epilepsy Advocacy Europe, a Joint Task Force formed following nominations by the Commission for European Affairs (CEA) of the International League Against Epilepsy….READ MORE
International Epilepsy Day
International Epilepsy Day is a special event which promotes awareness of epilepsy in more than 120 countries each year. READ MORE
What’s Happening
Australians living with epilepsy have access to a new helpline!
An Australian-first telephone and email service to support people living with epilepsy and their families [...]
Global Report – Epilepsy: a public health imperative
Epilepsy is a brain disease characterized by abnormal electrical activity causing seizures or unusual behaviour, [...]
IBE President Dr. Martin Brodie Receives Epilepsy Lifetime Accelerator Award at AEDD
2019 Lifetime Accelerator Award Winner Dr. Martin Brodie At the 2019 Antiepileptic Drug [...]
Upcoming Congresses
Elizabeth Dueweke, USA – IBE Golden Light Award Winner 2019
Searching for the Right Story
By Elizabeth B. Dueweke
At 18, my future felt […]
33rd International Epilepsy Congress, Bangkok 2019
The 33rd International Epilepsy Congress will take place in Bangkok, Thailand from June 22 to 26, 2019. This biennial meeting, which is a joint collaboration of the International Bureau […]
Latest Publications
Epilepsy Africa News – Issue 17
Chairperson & Editor’s message This is the 17th issue of Epilepsy Africa newsletter, now published [...]
International Epilepsy News – Issue 1, 2019
This latest issue of International Epilepsy News brings you a detailed report of the Strategic [...]
International Epilepsy Day 2019 Report published
International Epilepsy Day, a joint initiative created by the International Bureau for Epilepsy (IBE) and [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
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