International Bureau for Epilepsy

Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.

Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.

Our strategic priorities are to ensure that epilepsy is

recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.

We work to achieve these priorities through a range of programs including:

Public Information and Health Education
Advocacy
International Best Practice Exchange
Helping Build Communities of Care

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Our Initiatives

Promising Strategies

The IBE Promising Strategies Program was set up in 2006 and is one of the most successful and innovative of all IBE’s initiatives. READ MORE

Epilepsy Alliance Europe

EAE is the acronym for Epilepsy Advocacy Europe, a Joint Task Force formed following nominations by the Commission for European Affairs (CEA) of the International League Against Epilepsy….READ MORE

International Epilepsy Day

International Epilepsy Day is a special event which promotes awareness of epilepsy in more than 120 countries each year. READ MORE

What’s Happening

IE News: Issue 2 – 2017

April 27th, 2017|0 Comments

In late January, at a meeting of the Joint Executive Committees of IBE and ILAE, [...]

IBE Election Results – Regional Vice Presidents 2017 – 2019

April 12th, 2017|0 Comments

Introducing the seven recently elected IBE Vice Presidents, who will represent their regions on [...]

IBE/ILAE Congress Award Winners Announced

April 11th, 2017|0 Comments

The IBE/ILAE congress awards are presented biennially at the time of the International Epilepsy [...]

What is Epilepsy?

Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.

Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.

People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.