International Bureau for Epilepsy
Our Initiatives
Promising Strategies
The IBE Promising Strategies Program was set up in 2006 and is one of the most successful and innovative of all IBE’s initiatives. READ MORE
Epilepsy Alliance Europe
EAE is the acronym for Epilepsy Advocacy Europe, a Joint Task Force formed following nominations by the Commission for European Affairs (CEA) of the International League Against Epilepsy….READ MORE
International Epilepsy Day
International Epilepsy Day is a special event which promotes awareness of epilepsy in more than 120 countries each year. READ MORE
What’s Happening
A Golden Opportunity to recognise and award a young person affected by epilepsy in your chapter
Is there a young member of your association who is affected by epilepsy, or [...]
Towards a Global Alliance on Epilepsy Research
The Speakers Brian Hayes MEP Brian Hayes served as a member [...]
New multimedia project A Life Electric joins the fight to bring epilepsy out of the shadows in 2019
To coincide with International Epilepsy Day, Scottish production company Storm Features today launched an experimental [...]
Upcoming Congresses
10th LACE, San Jose, Costa Rica – September 29th – 2nd October 2018
The 10th Latin American Congress on Epilepsy will take place in San Jose, Costa Rica from September 29th to 2nd October 2018.
This biennial meeting, which is a joint collaboration of the International Bureau for Epilepsy […]
33rd International Epilepsy Congress, Bangkok 2019
The 33rd International Epilepsy Congress will take place in Bangkok, Thailand from June 22 to 26, 2019. This biennial meeting, which is a joint collaboration of the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE), […]
Latest Publications
International Epilepsy News – Issue 4, 2018
If one of the goals of the IBE is to allow the voices of people [...]
EPI-Focus Issue 13 – Newsletter of the IBE European Regional Executive Committee (EREC)
Dear Friends Preparing this message, I was looking through previous issues of EPI-Focus and the [...]
World Health Assembly Declaration on Epilepsy
WHO Declaration on the: Global burden of epilepsy and the need for coordinated action [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
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