WARNING: Please beware of email phishing scams
Phishing is a scam where fraudulent emails are sent to people in an attempt to trick them into revealing personal or financial information.
There appears to have been an increase in such emails targeting non-profit organisations such as patient associations. Today we have been notified of a number of emails being received that claimed to have been sent by a member of the IBE Executive Committee. These emails are fraudulent and have nothing to do with IBE.
When dealing with uninvited contacts from people or businesses, whether it’s over the phone, by mail, email, in person or on a social networking site, always consider the possibility that the approach may be a scam. Read more
Latest News
Message from the IBE President
Dear Friends, Martin Brodie, IBE President When I wrote my last message to [...]
WARNING: Please beware email phishing scams
Phishing is a scam where fraudulent emails are sent to people in an attempt to [...]
International Epilepsy Day 2020 Report
International Epilepsy Day, a joint initiative created by the International Bureau for Epilepsy (IBE) and [...]
Chapter News
International Epilepsy Day Event in Kharkiv, Ukraine
On February, 10th, 2020 in Kharkiv, Ukraine held an International Epilepsy Day event to support [...]
Epilepsy Ireland – Meet the Chapter
Paddy McGeoghegan, Communications Officer at Epilepsy Ireland, introduces us to the work of the organisation. [...]
Canadian Epilepsy Alliance/Alliance Canadienne De L’épilepsie – Meet the Chapter
In this article, submitted by Deirdre Floyd, President of Canadian Epilepsy Alliance/Alliance Canadienne De L’épilepsie [...]
Upcoming Congresses
Latin American Epilepsy Congress (LACE) 2020, Medellin, Colombia
The Latin American Epilepsy Congress, taking place in Medellin, Colombia, from 23-26 May 2020, is a 4 [...]
13th Asian & Oceanian Epilepsy Congress (AOEC)
The 13th Asian & Oceanian Epilepsy Congress (AOEC) will take place in Fukuoka, Japan, from 8-11 [...]
North American Epilepsy Congress 2020
The inaugural North American Epilepsy Congress, taking place in Toronto from the 25-27 September 2020, is [...]
Latest Publications
Epilepsy Africa News – Issue 22
Chairperson & Editor’s message We are excited with developments that took place during this period. [...]
International Epilepsy News – Issue 4, 2019
The dust has yet to settle on International Epilepsy Day 2020 as I write this [...]
Epilepsy Africa News – Issue 21
Chairperson & Editor’s message It is with excitement that we are closing this year 2019. [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
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