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A Floral note from IBE’s Chapter in the Czech Republic

Floral scents that benefits many How did one Prague non-profit deal with the extraordinary circumstances of a state of emergency? With 'magic flowers'! These are created by people with epilepsy and can help those in need. The non-profit organization Společnost E operates a flower workshop, 'The Arrangement', in Prague. People with epilepsy and their loved [...]

2020-05-20T15:01:53+00:00May 20th, 2020|

International Epilepsy Day Event in Kharkiv, Ukraine

On February, 10th, 2020 in Kharkiv, Ukraine held an International Epilepsy Day event to support patients. This was an initiative of the Bureau of Epilepsy in Ukraine and the Ukrainian League Against Epilepsy, with the endorsement of the International Bureau for Epilepsy (IBE) and SI “Institute of Neurology, Psychiatry and Narcology of the National Academy [...]

2020-03-18T14:06:01+00:00March 18th, 2020|

Epilepsy Ireland – Meet the Chapter

Paddy McGeoghegan, Communications Officer at Epilepsy Ireland, introduces us to the work of the organisation.   Epilepsy Ireland was founded in 1966 and for over 50 years we have been working to achieve a society where no persons’ life is limited by epilepsy. We have achieved a lot over the years but there’s a lot [...]

2019-10-09T15:31:38+00:00October 9th, 2019|

Canadian Epilepsy Alliance/Alliance Canadienne De L’épilepsie – Meet the Chapter

In this article, submitted by Deirdre Floyd, President of Canadian Epilepsy Alliance/Alliance Canadienne De L’épilepsie and IBE Representative, we'll learn the history of the CEA/ACE and about their ongoing work to improve the lives of Canadians affected by epilepsy.   Canadian Epilepsy Alliance/Alliance Canadienne de L’épilepsie (CEA/ACE) was formed in 1998 to address issues of [...]

2019-10-02T10:32:09+00:00October 1st, 2019|

Epilepsy Association of Sri Lanka (EASL) – Meet the Chapter

  Epilepsy Association of Sri Lanka (EASL) is a not-for-profit charity established in 1989 with the aim of striving to improve public awareness of epilepsy and to facilitate medical and social support for patients and families with epilepsy in Sri Lanka. Sri Lanka is a low- to middle-income country in which myths and misconceptions about [...]

2019-06-26T16:09:43+00:00July 16th, 2019|

AVANCE (Lebanon) – School and Association for children with epilepsy and special needs

AVANCE , the school and association for children with epilepsy and special needs was founded in Lebanon in 1997. The association was founded by Arlette Honein. AVANCE is recognised by the Lebanese Ministry of Interior (NGO Decree # 67) and recognised by the Ministry of Education as a specialised school. The Association’s mission is to [...]

2019-06-26T15:27:38+00:00July 9th, 2019|

Community Development and Epilepsy Foundation (CODEF)

Community Development and Epilepsy Foundation (CODEF), in Cameroon, was founded in 2002 by Nsom Kenneth Ninying, - community health nurse, whose relatives have epilepsy. His maternal uncle had five children, three of whom were tragically killed in a fire due to epilepsy. His school guardian had a son called Ephesians who had epilepsy and died [...]

2019-06-26T15:31:25+00:00July 2nd, 2019|

The Croatian Association for Epilepsy – Meet the Chapter

The Croatian Association for Epilepsy was established in 1998 with the aim of promoting, developing and improving the quality of life of all persons with epilepsy, as well as their families, and enabling a better understanding of the nature of epilepsy and the needs of people affected by it. The group’s activities include monthly meetings (lectures [...]

2019-06-26T15:29:33+00:00June 25th, 2019|

Caritas Malta Epilepsy Association – Meet the IBE Chapter

In this edition of IBE's Meet the Chapter series Robin Pinkston introduces the Caritas Malta Epilepsy Association Caritas Malta Epilepsy Association was set up in 1996 and is run completely by volunteer workers.  Our mission statement is “a better life for people with epilepsy in Malta.“ We provide free training sessions in many different venues [...]

2019-06-18T14:17:41+00:00June 18th, 2019|

Epilepsy Association of Sierra Leone (EASL) – Meet the IBE Chapter

In this week's edition of IBE's Meet the Chapter series, Max A. Bangura, Executive Director of the Epilepsy Association of Sierra Leone (EASL), introduces us to the work of his organisation. The Epilepsy Association of Sierra Leone (EASL) is an Indigenous community Based Non-Governmental Organization (NGO) that was formed in 1999, registered with the Sierra [...]

2019-05-27T20:33:08+00:00June 11th, 2019|