The teenage years and early adulthood can be a traumatic and challenging time for many people. Peer pressure, the wish to be the same and yet different, changing hormones and developing bodies can all exert emotional influences. For young people with epilepsy, the desire to be the same as their peers- to be able to stay out late and party until dawn, to drink alcohol, to go on dates, to enjoy nightclubs with flashing lights, can bring extra stress.

YEAH (Young Epilepsy Advocates Hub) recognises the value of peer support at this challenging time in young people’s lives. Via a private Facebook Group, this project represents a safe online environment for young people with epilepsy to meet and discuss issues of relevance to them – not only those that might relate to epilepsy, but also their day to day activities and interests. The upper age-limit is 30 years.

Publications

Exploring Epilepsy and the Family

A Report from the Global Youth Team of the International Bureau for Epilepsy [IBE] on International Day of Families 2023.

For young people with epilepsy, the role of family is crucial to support their development and allow them to reach their true potential. Ahead of the UN International Day of Families, the IBE Global Youth Team asked their families about their experiences supporting loved ones with epilepsy. Youth Team members then produced a report outlining their findings and making some important recommendations for the epilepsy community and beyond.

We invite you to download this article and get in touch with your own work or research on this topic, or any experiences, comments or reflections on this work ([email protected]).

Advocates Valentina Kahn, Susana Lara and Noemí Canales have been working on the creation of a Latin American Youth Group, linked to the IBE Youth Programme and supported by Dr Tomás Mesa (Chair of the Latin American Chapter of the IBE). The group seeks to connect people with epilepsy to share their experiences and the work they do for epilepsy. It also promotes education about the condition and other life skills, with members from across the Latin America Region.

They are looking for young people (age 25-45) who have epilepsy or are family members of a person with epilepsy who are committed, motivated, empathetic and who have leadership skills. They will hold an information meeting about the development of this group on Saturday 3rd June.

Download (En Español)