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Global epilepsy community : grants available
The Epilepsy Foundation supports a series of grants and fellowships to advance the understanding of epilepsy that will lead to better treatment, more effective prevention, and ultimately to a cure. Funding is available to researchers at all professional levels including students, junior investigators and established investigators. [...]
Epilepsy Foundation Competition open for entries
Do you have an innovative idea to help people with epilepsy and seizures? Throw it to the sharks! The Epilepsy Foundation is inviting entries that represent the most innovative new ideas in epilepsy treatment and care for its fourth annual Shark Tank Competition. The [...]
International Epilepsy Day : Announcement
This joint iniativate of the IBE and the ILAE will be a major event celebrated across the globe in the 138 of countries in which IBE and ILAE are represented. With both IBE and ILAE in official working relations with the WHO, and with IBE in Special [...]
EPIFocus Issue 2 – 2014
The second issue of EPIFocus 2014, the newsletter of the IBE European Regional Committee – is now available to download. In this issue … Message from the Chair Swedish Summercamp New Definition of Epilepsy Epilepsy: a chronic life long, non-communicable disease International Epilepsy Day Important News about WHO [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
