Epilepsy Information

The International Bureau for Epilepsy was founded in Rome in 1961 and its first Constitution was adopted on 15th September 1966. Amendments were made to the Constitution in 1978, 1985, 1993, 1997 and 1999. The current Constitution, adopted in January 2005, is the result of a major review of the previous Constitution, which was carried out by the IBE Constitutional Review Task Force during 2003/2004 and approved by ballot by the IBE General Assembly in December 2004. The latest amendment to the Constitution, to allow the introduction of a new class of member, Regional Membership, was ratified by the General Assembly on 1st July 2009. Download the IBE Constitution Download the IBE Bye-Laws

DOCUMENTOS A ENVIAR 1- Certificación por secretaria general de la asociación en cuestión. 2- Constitución 3- copia de certificados legales 4- Lista de miembros fundadores 5- Publicación en periódico Haga clic aquí para información sobre Estat

European Union Written Declaration on Epilepsy A Written Declaration on Epilepsy has been submitted to the European Parliament by the recently created European Advocates for Epilepsy Group within the European Parliament on behalf of the International Bureau for Epilepsy and the International League Against Epilepsy. The Written Declaration was submitted by Mr Gay Mitchell MEP, President of the European Advocates for Epilepsy Group, and co-signed by four other MEPs: Mr Nirj Deva (UK), Mrs Marian Harkin (Ireland), Mr Peter Skinner (UK) and Mrs Angelika Werthmann (Austria) representing the five different parties in European Parliament. We now have until 15th September to encourage a minimum of 369 MEPs to sign the declaration in order to have it adopted. And this is where we need your help. THE PROCESS Written declarations are printed, translated and posted in a register. The register is public and is kept outside the entrance to the Chambers in Strasbourg and Brussels during plenary sessions. Declarations are also published on Parliament’s website. The Written Declaration on Epilepsy will be ready for signing ahead of the May plenary session in Strasbourg. Thereafter MEPs will be able to sign it during the plenary sessions in Strasbourg in June, July and September [...]

WHO and international epilepsy organisations expose unacceptable state of epilepsy care across Europe New report provides recommendations to improve the quality of care and understanding of epilepsy, and reduce stigmatisation to help bring epilepsy ‘out of the shadows’ [8.00am CET, 26 August, Porto, Portugal] The World Health Organization (WHO) and the two international epilepsy organisations, the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE), have today announced the publication of a report into epilepsy in Europe, which concludes that many aspects of epilepsy care are seriously under-resourced. The Fostering epilepsy care in Europe report has been developed as part of the IBE/ILAE/WHO Global Campaign Against Epilepsy (GCAE). The report addresses the current challenges faced in epilepsy care and offers recommendations to tackle them, as well as providing a panoramic view of the present epilepsy situation across the continent. “Epilepsy is a highly treatable condition but the existing gaps in epilepsy care and the level of stigmatisation faced by people with epilepsy are simply unacceptable,” said Hanneke M. de Boer, Co-ordinator of the Global Campaign Against Epilepsy from the SEIN Epilepsy Institute in the Netherlands. “By joining forces to spearhead the GCAE, and by producing and launching this [...]

Funded by the EU 6th Framework Programme – Project EC LSH-037315 Epicure has made the headlines in Italy. It was reported by the Italian national news agency ANSA who described how neurotrophic factors have been found which could prevent spontaneous seizures in an epilepsy model. Thua research was carried out by EPICURE’s Michele Simonato’s team at the University of Ferrara and published in PNAS in April 2009. The novel aspect of this research is that a genetically modified virus is used to administer the proteins to the brain. A study in rats suggests that localized hippocampal delivery of FGF-2 and BDNF may be useful for decreasing seizure frequency. In a rat model of epilepsy, hippocampal delivery of a vector containing BDNF and FGF-2 decreased the incidence of spontaneous recurrent seizures, the number of seizures per day and seizure severity compared with what was seen using a control vector. The vector also increased hippocampal volume and neurogenesis compared with that seen using the control vector. Next steps include evaluating the approach in other epilepsy models and developing better delivery methods. This research was also reported in the il resto del carlino and Libero newspapers which explained how this research opens new perspectives [...]

A manual for mothers, families and teachers ‘How to help children with epilepsy’ is a recent publication by the WHO Regional Office for the Eastern Mediterranean on epilepsy. The manual has been produced in Arabic for field testing in several countries of the Region. This manual provides basic information and knowledge for caretakers, mainly mothers, families and teachers dealing with children with epilepsy as well as for the children themselves. In doing so it is hoped that misconceptions regarding epilepsy can be dispelled and the stigma and discrimination associated with the condition combated. The manual also attempts to provide simplified guidance on addressing different issues related to the disease in the day-to-day life of children with epilepsy and their families in order to enable them to become active contributing members of their community. The manual is currently being field-tested. If you are interested in field-testing it please contact [email protected].