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IBE Annual Report 2022-23
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IBE Webinar: Developmental and Epileptic Encephalopathies – Now and Next
IBE is pleased to invite you to attend a one-hour zoom webinar on Developmental and Epileptic Encephalopathies: Now and Next. This webinar is aimed at DEE families and advocates, but also IBE chapters and other stakeholders who want to learn more about advances in the [...]
Global Youth Regional Workshops – Express Your Interest Now!
The International Bureau for Epilepsy's Global Youth Team is excited to announce a series of seven virtual workshops taking place this Autumn, specifically designed for young people aged 18-35 with epilepsy. The purpose of the workshops will be to explore the emerging themes of the [...]
Global Epilepsy Needs Survey: Your Voice Matters!
The International Bureau for Epilepsy's (IBE) Global Epilepsy Needs Survey (GENS) is your chance to speak up and make a real difference. After a successful launch across 15 countries, GENS is now open to everyone with epilepsy (18+) and their caregivers worldwide. This is your opportunity [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
