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EDYCS Epilepsy Group – Meet the IBE Chapter
In this edition of IBE's 'Meet the Chapter' series we are introduced to the Mauritius-based Edycs Epilepsy Group. Edycs Epilepsy Group is the leading, voluntary non-governmental organisation founded on 24 December 1997 by a group of volunteers, patients and health professionals, whose aims are to assist [...]
The Spanish Federation for Epilepsy (FEDE) – Meet the IBE Chapter
The Spanish Federation for Epilepsy (FEDE) was founded on April 1st 2006, with the cooperation of 15 regional Spanish associations. Today we represent 20 associations. Our aim is to improve the quality of life for people with epilepsy and their families. To do so we inform society [...]
IBE President Dr. Martin Brodie Receives Epilepsy Lifetime Accelerator Award at AEDD
2019 Lifetime Accelerator Award Winner Dr. Martin Brodie At the 2019 Antiepileptic Drug & Device (AEDD) Trials conference in Florida, on May 24th, the Epilepsy Foundation awarded the Epilepsy Lifetime Accelerator Award to Professor Martin J. Brodie, M.D., president of the International Bureau for [...]
Coming soon: The first global report on epilepsy
EPILEPSY: A public health imperative Coming soon: The first global report on epilepsy and an important milestone in translating the World Health Assembly resolution (WHA68.20) on the global burden of epilepsy into action. It is time to highlight epilepsy as a public health priority, to strongly [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
