Latest News
NEW REPORT: Exploring Epilepsy and the Family
Exploring Epilepsy and the Family A Report from the Global Youth Team of the International Bureau for Epilepsy [IBE] on International Day of Families 2023. For young people with epilepsy, the role of family is crucial to support their development and allow them to reach [...]
VIRTUAL EVENT: Women and Epilepsy
The world of sexual development, menstruation, contraception, fertility, pregnancy and menopause is complex, but when you have epilepsy, there are extra issues you need to know about. Unfortunately, being a woman with epilepsy is not the same as being a man with epilepsy. On [...]
Participants Needed for Clinical Trial on Focal Epilepsy
Have you, or a family member, been diagnosed with focal epilepsy which is not currently fully controlled by medication? Are you based in the United States or Israel, and between the ages of 18 to 65? If so, you may wish to consider enrolling [...]
Launch of IBE E-Learning Modules
Today, on World Health Day, we are delighted to announce the launch of our new e-Learning module series. World Health Day (WHD), held every year on 7 April, marks the anniversary of the founding of the World Health Organization (WHO) in 1948, so it is [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
