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IE News: Issue 1 – 2013
IE News 50 Years In Print! When the late George Burden sat down to compose the first issue of the Bureau Newsletter, in the early days of January 1963, he did so on what was then “state of the art” equipment - a Remington manual typewriter. Corrections were made using a [...]
Regional Executive Committee Results Western Pacific Region
Chair: Denise Chapman, Australia Vice Chair: Frank Gouveia, New Zealand Secretary: Yuan Fu Tseng, Taiwan Ex-Officio: Ding Ding, China (VP Western Pacific) The Regional Executive Committee for the Western Pacific Region consists of the Chair, Vice Chair and Secretary, all of whom have been elected by the Full Members in [...]
Regional Executive Committee North American Results
Chair: Mary Secco, Canada Vice Chair: Sandy Finucane, USA Secretary: Vacant Ex-Officio: Philip Gattone, USA (VP North America) The structure of the Regional Executive Committee for the North American Region consists of the Chair, Vice Chair and Secretary, all of whom will have been elected by the Full Members in [...]
Regional Executive Committee South East Asia (2013-2017)
Chair: Parthasarthy Satishchandra, India Vice Chair: Muzharul Mannan, Bangladesh Secretary: Kabindra Man Pradhan, Nepal Ex-Officio: Dr Man Mohan Mehnidiratta, India (VP South East Asia) The Regional Executive Committee for the South East Asia Region consists of the Chair, Vice Chair and Secretary, all of whom have been elected by the [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
