Latest News
Issue 3 – 2008
Issue 3 – 2008 This issue of IE News includes several interesting reports. We can mention an important workshop that took place in Honduras. This is an initiative within the framework of the Global Campaign Against Epilepsy and again reinforces the importance of work together with our [...]
Issue 2 – 2008
Issue 2 – 2008: In this issue there is an important article about Ghana in a report prepared by Emilio Perucca. There is also the positive news of Australias ratification of the UN Convention on the Rights of Persons with Disabilities together with an article on [...]
Driving Regulations Task Force
Introduction “There are few aspects of having epilepsy in adult life that cause greater distress than the necessary legal restrictions on driving”. Hopkins, A. Appleton, R 1996 “Epilepsy The Facts” Across Europe, persons with epilepsy can experience widely different regulations regarding driving. Many countries operate a [...]
Facts about Epilepsy
What is Epilepsy? Epilepsy is a medical condition that produces seizures affecting a variety of mental and physical functions. It is also called a seizure disorder. When a person has two or more seizures, they are considered to have epilepsy. A seizure happens when a brief, [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
