Epilepsy specific information
A report by Kenneth Nsom, Director of CODEF, an IBE Associate Chapter in Cameroon
SUDEP Action has launched three research projects to understand the impact of COVID-19 on people with epilepsy and their carers, healthcare workers, and on those bereaved by epilepsy
To be published in full in the journal Neurology in due course. Authors include IBE President, Martin Brodie.
Professor Gus A. Baker and Professor Steven Kemp, on behalf of the IBE
ILAE – Resources available in 10 languages
Resources available in 7 languages
Epilepsy Action (UK)
Dravet Syndrome UK (March 24. 2020)
Epilepsy South Africa
Interessenvereinigung für Anfallskranke in Koeln EV, Germany
Centro Nacional de Epilepsia (Ecuador) Webinar Series
Saturday 8 May: Participation of the Ecuadorian delegations of ICNA, IBE, OIPR.
Webinar: Affective – emotional – relational difficulties in the child with ADHD
Saturday 22 May: Participation of the Ecuadorian delegations of ICNA, IBE, OIPR.
Conference: The psychomotricity key for the emotional regulation of the
Contact Galo Pesantez here for registration information.
Information from International Health Authorities
How have those living with epilepsy and their carers been affected by Covid-19?
– ILAE Survey for Patients and Caregivers
The International League Against Epilepsy is looking for your help in rolling out a survey to determine the impact of COVID-19 on people with epilepsy, and their carers. The survey has been developed by a task force whose membership includes Peter Murphy, Chief Executive Officer of Epilepsy Ireland, IBE’s chapter in Ireland. Peter represents the voice of the person with epilepsy and their care providers on the task force.
You can find the survey here.
– University of Oxford three part survey
The IBE African Regional Executive Committee is working in the collaboration with Oxford University/John Radcliffe Hospital in Oxford, UK in carrying out an Epilepsy/COVID-19 Survey. The survey is in three parts to study the impact of COVID-19 on three cohorts: people with epilepsy, their carer providers, and healthcare workers.
- Survey for people with epilepsy
- Survey for carers of people with epilepsy
- Survey for health care workers
– University of Antwerp, Belgium (survey in English and French)
This survey is organised by an international consortium of scientists from Asia, Africa, South America, United States and Europe. The protocol and questionnaire is largely based on the citizen science Corona survey first launched in Belgium by the University of Antwerp in March and which is repeated every Tuesday throughout the COVID-19 epidemic in Belgium.
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