Latest News
Issue 2 – 2010
Dear Friends: In the Southern Hemisphere we are starting the rainy season and in Chile, two months after the terrible earthquake and its aftershocks, things are gradually beginning to improve for the many thousands of people who lost their homes. In this issue of IE News [...]
Issue 1 – 2010
Dear friends, I am very enthusiastic about this issue of IE-News. We have a lot of articles and reports. We can mention a nice piece of work coming form India prepared by Vinod Saxena analysing epilepsy and divorce in India, a complex and touching history. An [...]
Epicure in Italy!
Funded by the EU 6th Framework Programme – Project EC LSH-037315 Epicure has made the headlines in Italy. It was reported by the Italian national news agency ANSA who described how neurotrophic factors have been found which could prevent spontaneous seizures in an epilepsy model. Thua [...]
Issue 4 – 2009
Dear friends, There are several items that I would like to emphasize in this issue of IE News. In late November, there was an important meeting in Rome of the IBE International Executive Committee, dedicated to the task of considering and elaborating on IBEs Long Term [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
