The Legislation Task Force

The Legislation Task Force is a Task Force established by the International Executive Committee (IEC) in April 2014.  The Task Force works within the ambit of the policy framework set by the International Executive Committee and reports to the International Executive Committee. Members of the Legislation Task Force Chair: Stine Strømso (Norway) Members: Caroline Morton (Netherlands) Nikki Saarsteiner (Ireland) Sherman Goh (Singapore) Silvia Kochen (Argentina) Objectives of the Legislation Task Force To identify and target specific areas of epilepsy legislation which IBE and its member associations may use in advocacy work, political activity, and in initiatives to publicise and raise awareness of epilepsy. These will include, but are not exclusive to:- Stigma To promote legislation projects that address ways in which the negative effects of epilepsy might be minimized. Driving To establish how widely the European Directive on Driving has been implemented in EU countries. To survey IBE members on driving legislation in other countries. Employment: To consider employment legislation to safeguard the rights of persons with epilepsy in the workplace. Insurance: To identify issues regarding access to affordable health insurance for people with epilepsy. Educational issues in epilepsy: To promote legislation to ensure the rights of people with epilepsy to [...]

2017-02-18T13:07:32+00:00September 7th, 2014|

Election Task Force

Objectives The Task Force will, inter alia :- be responsible for managing and administering the election process in all of the IBE’s elections; issue notice of an election and call for the nomination of candidates not less than 120 days before the date of the election; issue ballot forms, together with an appropriate form of proxy, to all eligible voting Full Members not less than 60 days before the date of the election; audit the election and will confirm and declare in writing the result; determine if there is any breach of the election procedures and will judge whether or not disqualification is warranted; in matters of doubt or interpretation will refer to the IBE’s Constitution, bye-laws, policies and procedures and professional advisers as required.   CLICK HERE to download the Terms of Reference for the Election Task Force

2017-02-18T13:07:31+00:00September 3rd, 2014|

Joint Task Force

The Joint Task Force was created in mid‐2011 in order to co‐ordinate the efforts of IBE & ILAE to advance the epilepsy cause in Europe in respect of awareness and research particularly within the European Union. Overview Primary Mission The primary mission of EAE is to facilitate initiatives to enhance public awareness and support for epilepsy research in Europe.  EAE seeks to make epilepsy a priority in political and research establishments across Europe.  Aims  To further the understanding of epilepsy in Europe. To promote epilepsy as a public health priority among all stakeholders including policy makers and health authorities. To develop specific advocacy projects, in particular activities in keeping with EU funding mechanisms such as  FP7 and Horizon 2020. To assist in identifying sources of research funding for epilepsy in Europe. To promote collaborative interdisciplinary research initiatives in epilepsy across Europe. To liaise with other international initiatives. Click to view current Members of the Joint Task Force 2013 - 2017. To view some of  the activities of the Joint Task Force - please click here

2017-02-27T13:45:26+00:00August 20th, 2013|

Epilepsy and Driving Task Force

Driving regulations for people with epilepsy vary enormously from country to country (and even within some countries) and within regions of the world. There are also many countries that have no regulations or have blanket bans on driving for persons with epilepsy. It can often be very difficult to access information on what regulations apply in a country and as a result many people with epilepsy are unfairly precluded from, or restricted in, driving. It also means that many people with epilepsy drive when they should not, as a consequence of unfair or unclear rules. The purpose of the Driving and Epilepsy Group is to improve driving conditions for all people with epilepsy. Members of the Epilepsy and Driving Task Force are: Eric Schmedding, Belgium (Chair) Marshal Mo-Song Hsi, Taiwan Mike Glynn, Ireland Silvia Kochen, Argentina Andrew Pan, Singapore

2017-02-27T13:53:59+00:00January 25th, 2011|

Driving Regulations Task Force

Introduction “There are few aspects of having epilepsy in adult life that cause greater distress than the necessary legal restrictions on driving”. Hopkins, A. Appleton, R 1996 “Epilepsy The Facts” Across Europe, persons with epilepsy can experience widely different regulations regarding driving. Many countries operate a blanket ban on people with epilepsy preventing them from driving, while other countries have regulations that may differ significantly from neighbouring countries. Therefore the need for Europe-wide regulations is very evident. Driving Regulations Across Europe At present the following European countries, ranked according to their GDP, have driving regulations for epilepsy: 1 Luxembourg 69,800 2 Norway 42,364 4 Ireland 40,610 5 Iceland 35,115 (not a member for the EU) 6 Denmark 34,740 9 Austria 33,432 10 Switzerland 32,571 (not a member of the EU) 12 Belgium 31,244 13 Finland 31,208 15 Netherlands 30,862 17 Germany 30,579 18 United Kingdom 30,436 19 Sweden 29,926 20 France 29,187 21 Italy 28,534 25 Spain 26,320 30 Greece 22,392 36 Malta 19,739 37 Portugal 19,335 38 Czech Republic 18,341 Interestingly the countries who do not have driving regulations tend to have lower GDPs. 31 Slovenia 21,808 33 Cyprus 21,177 41 Hungary 16,823 43 Estonia 16,414 45 Slovakia 16,041 49 [...]

2017-02-27T13:55:19+00:00October 11th, 2008|
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