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The Power of Advocacy – Scarlett Paige reflects on the two months since winning an IBE Golden Light Award
On 9th of April 2019 I received an email that would allow me to advocate for epilepsy on an international scale with it I can help epilepsy get the respect it deserves and hopefully people living with it accepted not judged. The email was from Ann [...]
‘Hear My Story ‘ – communications workshop for young adults
In October 2019, the IBE plans to hold the ‘Hear My Story’ workshop for young adults with epilepsy living in Europe. The event will run over a weekend, from Friday 4th to Sunday 6th, and will gather 20 young adults from across Europe who [...]
Epilepsy Association of Sri Lanka (EASL) – Meet the Chapter
Epilepsy Association of Sri Lanka (EASL) is a not-for-profit charity established in 1989 with the aim of striving to improve public awareness of epilepsy and to facilitate medical and social support for patients and families with epilepsy in Sri Lanka. Sri Lanka is a low- [...]
AVANCE (Lebanon) – School and Association for children with epilepsy and special needs
AVANCE , the school and association for children with epilepsy and special needs was founded in Lebanon in 1997. The association was founded by Arlette Honein. AVANCE is recognised by the Lebanese Ministry of Interior (NGO Decree # 67) and recognised by the Ministry of Education [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
